A Child's "Terminal Illness": An Analysis of Text Mediated Knowing
Date
2014-08-15
Authors
Bell, Nancy Marie
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Abstract
Several years ago a ten year child with a disability died from "severe malnutrition"
according to a Coroners Service inquest jury. The inquest evidence shows that
approximately one week prior to this child's death three health care providers conducted
individual assessments of the child. Using institutional ethnography as a theoretical and methodological framework, the author conducts a textual analysis of the health care
providers' documents generated during their provision of service to this child. Obtained
as public documents from the Coroners Service, this data includes: the hospital form, the hospice society records and home care nursing records.
Description
Keywords
children, malnutrition, institutional ethnography, Rett syndrome