The experiences of siblings of children with congenital heart disease
Date
2003
Authors
Elliott, Tara Louise
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Abstract
This qualitative study explores the lived experience of siblings of children with congenital heart disease. The participants include six school age children and their parents from Vancouver Island, British Columbia (total n = 14). Data were gathered using semi-structured interviews and were thematically analysed. Findings of the inquiry indicate that children experience worry and concern for their sibling and require information and awareness about the condition. Additionally, communication between family members is an important factor in the development of coping skills and understanding. The findings further indicate that parents' perceptions of their healthy child's experiences were in agreement with those of their child. Limitations of the study and implications for parents and professionals are discussed. Directions for future research are presented.