Barriers and enablers of access to good end-of-life care for 2SLGBTQIA+ people

Date

2023-03-17

Authors

Friedland, Matsuko

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Abstract

This research expands on previous research which explored the unique barriers to quality end-of-life (EOL) care for Two-Spirit, lesbian, gay, bisexual, transgender, queer, and other related (2SLGBTQ+) older adults. This group faces health disparities due to a service gap, as well as general distrust and reluctance in accessing healthcare due to discrimination over the life course. Meyer’s Minority Stress Model and Bronfenbrenner’s Ecological Model formed the basis for analysis. 2SLGBTQ+ engagement and satisfaction with hospice and palliative care (HPC) services, and health care provider perceptions of care delivery and clinical experiences related to 2SLGBTQ+ health were also evaluated. The research findings identified two overarching themes of “needs” and “barriers”, with needs comprised of three subthemes (inclusivity, competency, and positive experiences) and barriers comprised of four subthemes (distrust, stigma, losses, and COVID-19). The research will be updated and expanded through additional research and knowledge translation activities.

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Keywords

long-term care, palliative care, aging, end-of-life care, LGBTQ, LGBTQ+

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