Riding the wave: A grounded theory of transplant transition in adolescents and youth adults

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dc.contributor.authorLim, Angie
dc.contributor.authorMarcellus, Lenora
dc.date.accessioned2023-10-14T17:47:16Z
dc.date.available2023-10-14T17:47:16Z
dc.date.copyright2023en_US
dc.date.issued2023
dc.description.abstractObjectives: The health care transition from pediatric to adult-focused health care for adolescent and young adult (AYA) organ transplant recipients is a critical yet understudied period. Unique challenges include supporting adherence to immunosuppressive regimens and addressing psychosocial factors that impact long-term graft survival and recipient well-being. The objective of this study was to understand how AYAs prepared for and engaged in the transition process. Methods: Constructivist grounded theory, underpinned by symbolic interactionism, was employed to systematically gather, synthesize, analyze, and conceptualize qualitative data from in-depth interviews with 14 transplant recipients, their families, and pediatric nurses, and related online social media stories. Results: The overall process participants experienced was that of riding the wave of change: transforming through transition, which they did through navigating four phases: (1) anticipating the impending transition, (2) losing security when transitioning to uncertainty, (3) seeking supportive anchors in the swell of transition, and (4) gaining a new sense of self. Conclusions: AYA transplant recipients undergo numerous changes as they enter adulthood and adult-focused health care. There are many opportunities for pediatric and adult health care providers to collaborate to strengthen support for AYA recipients and their families during this critical period. Developmental and trauma-informed approaches are recommended to support successful transition.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.identifier.citationLim, A. & Marcellus, L. (2023). Riding the wave: A grounded theory of transplant transition in adolescents and youth adults. Health Care Transitions, 1, 100019. https://doi.org/10.1016/j.hctj.2023.100019.en_US
dc.identifier.urihttps://doi.org/10.1016/j.hctj.2023.100019
dc.identifier.urihttp://hdl.handle.net/1828/15503
dc.language.isoenen_US
dc.publisherHealth Care Transitionsen_US
dc.subjectAdolescent
dc.subjectYoung adult
dc.subjectTransplant
dc.subjectGrounded theory
dc.subjectHealth care transition
dc.subject.departmentSchool of Nursing
dc.titleRiding the wave: A grounded theory of transplant transition in adolescents and youth adultsen_US
dc.typeArticleen_US

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