Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study
Date
2021
Authors
Napoli, Silvana B.
Vitale, María Paula
Cafiero, Pablo J.
Micheletti, María Belén
Bradichansky, Paula Pedernera
Lejarraga, Celina
Urinovsky, Maria Gabriela
Escalante, Anabella
Rodriguez, Estela
Schiariti, Verónica
Journal Title
Journal ISSN
Volume Title
Publisher
International Journal of Environmental Research and Public Health
Abstract
Background: Autism spectrum disorder (ASD) affects the daily functioning of children
and their families; however, in Argentina, there are no standardized tools to guide the description,
evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the
overarching purpose of this study was to create a novel tool guided by the International Classification
of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice. Methods: A
multistep methodology was used to identify the most relevant ICF categories for an Argentinian
clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results.
Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally,
profiles of the functioning of 100 children with ASD were created. Results: An ICF-based tool called
TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and
participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated
a family-centered approach in ASD evaluations and helped identify functional needs. Conclusions:
TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of
children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric
ASD populations in Latin American contexts.
Description
Keywords
ICF, autism spectrum disorder, functioning, child, measure, assessment
Citation
Napoli, S. B., Vitale, M. P., Cafiero, P. J., Micheletti, M. B., Bradichansky, P. P., Lejarraga, C., … Schiariti, V. (2021). Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: REA-CIFunciona Version 1.0 Pilot Study. International Journal of Environmental Research and Public Health, 18(7), 1-18. https://doi.org/10.3390/ijerph18073720.