Understanding the mental health and recovery needs of Canadian youth with mental health disorders: a Strategy for Patient-Oriented Research (SPOR) collaboration protocol

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dc.contributor.authorBarbic, Skye P.
dc.contributor.authorLeon, Adelena
dc.contributor.authorManion, Ian
dc.contributor.authorIrving, Sarah
dc.contributor.authorZivanovic, Rebecca
dc.contributor.authorJenkins, Emily
dc.contributor.authorBen‑David, Shelly
dc.contributor.authorAzar, Pouya
dc.contributor.authorSalmon, Amy
dc.contributor.authorHelps, Carolyn
dc.contributor.authorGillingham, Stephanie
dc.contributor.authorBeaulieu, Tara
dc.contributor.authorPattison, Rachal
dc.contributor.authorTalon, Corinne
dc.contributor.authorOyedele, Oluseyi
dc.contributor.authorTee, Karen
dc.contributor.authorMathias, Steve
dc.date.accessioned2020-11-20T22:14:46Z
dc.date.available2020-11-20T22:14:46Z
dc.date.copyright2019en_US
dc.date.issued2019
dc.description.abstractBackground While considerable progress is being made to understand the health and self-management needs of youth with mental health disorders, little attention has focused on the mental health and recovery needs that the youth themselves identify—this despite a national priority to incorporate patient-oriented research into the development and assessment of mental health services. To address this gap, estimates of the extent to which existing patient-reported outcome measures (PROMs)—originally developed for use amongst adult populations—are clinically meaningful and psychometrically fit for use among youth are needed. In tandem, a recovery profile for youth can be constructed incorporating the youth perspective of the services provided within a community mental health setting. Methods/design This study will utilize a mixed methods design incorporating qualitative focus group interviews and cross-sectional survey. Our process will begin with the hiring of a youth peer research partner who will provide lived experience expertise through all phases of the study. We will advertise, recruit, and conduct four focus groups with youth who receive services from the Foundry Vancouver Granville located in British Columbia, Canada. In the first two focus groups, we will recruit youth aged 15–18 years (n = 10). In the second two focus groups, we will recruit young adults aged 19–24 years (n = 10). In parallel, we will conduct a cross-sectional survey of the recovery and mental health needs of youth, informed by ten widely used and validated PROM. Thematic analysis techniques will guide the identification of predominant thematic trends in the qualitative focus group data. We will use Classical and Rasch measurement methods to test and analyze the reliability and validity of selected PROM measures for youth populations. Discussion The proposed study has the potential to produce a preliminary conceptual and measurement model for understanding the mental health and recovery needs of youth with mental health disorders. This evidence will inform how youth mental health services can grow, support, and sustain the capacity for a collaborative, interdisciplinary and innovative patient-oriented research environment. Findings will also contribute much needed evidence to improve the standard of care for youth who experience mental health disorders in Canada and beyond.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.description.sponsorshipAcknowledgements The authors wish to thank Dr. Letitia Henville for her editorial support reviewing this manuscript. Funding Funding for this study has been received by the Canadian Institutes for Health Research Strategy for Patient Oriented Research Collaborating Grant and the St. Paul’s Hospital Foundation.en_US
dc.identifier.citationBarbic, S. P., Leon, A., Manion, I., Irving, S., Zivanovic, R., Jenkins, E., … Mathias, S. (2019). Understanding the mental health and recovery needs of Canadian youth with mental health disorders: a Strategy for Patient-Oriented Research (SPOR) collaboration protocol. International Journal of Mental Health Systems, 13(1). https://doi.org/10.1186/s13033-019-0264-0en_US
dc.identifier.urihttps://doi.org/10.1186/s13033-019-0264-0
dc.identifier.urihttp://hdl.handle.net/1828/12368
dc.language.isoenen_US
dc.publisherInternational Journal of Mental Health Systemsen_US
dc.subjectYoung adult
dc.subjectMental health
dc.subjectMeasurement
dc.subjectPatient engagement
dc.subject.departmentDepartment of Psychology
dc.titleUnderstanding the mental health and recovery needs of Canadian youth with mental health disorders: a Strategy for Patient-Oriented Research (SPOR) collaboration protocolen_US
dc.typeArticleen_US

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