Bereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settings

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dc.contributor.authorStajduhar, Kelli
dc.contributor.authorSawatzky, Richard
dc.contributor.authorCohen, S. Robin
dc.contributor.authorHeyland, Daren K.
dc.contributor.authorAllan, Diane
dc.contributor.authorBidgood, Darcee
dc.contributor.authorNorgrove, Leah
dc.contributor.authorGadermann, Anne M.
dc.date.accessioned2019-03-05T21:12:02Z
dc.date.available2019-03-05T21:12:02Z
dc.date.copyright2017en_US
dc.date.issued2017
dc.description.abstractBackground: The aims of this study were to gain a better understanding of how bereaved family members perceive the quality of EOL care by comparing their satisfaction with quality of end-of-life care across four different settings and by additionally examining the extent to which demographic characteristics and psychological variables (resilience, optimism, grief) explain variation in satisfaction. Methods: A cross-sectional mail-out survey was conducted of bereaved family members of patients who had died in extended care units (n = 63), intensive care units (n = 30), medical care units (n = 140) and palliative care units (n = 155). 1254 death records were screened and 712 bereaved family caregivers were identified as eligible, of which 558 (who were initially contacted by mail and then followed up by phone) agreed to receive a questionnaire and 388 returned a completed questionnaire (response rate of 70%). Measures included satisfaction with end-of-life care (CANHELP-Canadian Health Care Evaluation Project - family caregiver bereavement version; scores range from 0 = not at all satisfied to 5 = completely satisfied), grief (Texas Revised Inventory of Grief (TRIG)), optimism (Life Orientation Test - Revised) and resilience (The Resilience Scale). ANCOVA and multivariate linear regression were used to analyze the data. Results: Family members experienced significantly lower satisfaction in MCU (mean = 3.69) relative to other settings (means of 3.90 [MCU], 4.14 [ICU], and 4.00 [PCU]; F (3371) = 8.30, p = .000). Statistically significant differences were also observed for CANHELP subscales of "doctor and nurse care", "illness management", "health services" and "communication". The regression model explained 18.9% of the variance in the CANHELP total scale, and between 11.8% and 27.8% of the variance in the subscales. Explained variance in the CANHELP total score was attributable to the setting of care and psychological characteristics of family members (44%), in particular resilience. Conclusion: Findings suggest room for improvement across all settings of care, but improving quality in acute care and palliative care should be a priority. Resiliency appears to be an important psychological characteristic in influencing how family members appraise care quality and point to possible sites for targeted intervention.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.description.sponsorshipThis research was funded by the Michael Smith Foundation for Health Research (MSFHR). The funder had no role in study design; the collection, analysis and interpretation of data; the writing of the report; or the decision to submit the article for publication.en_US
dc.identifier.citationStajduhar, K.; Sawatsky, R.; Cohen, S. R.; Heyland, D. K.; Allan, D.; Bidgood, D.; Norgrove, L.; & Gadermann, A. M. (2017). Bereaved family members' perceptions of the quality of end-of-life care across four types of inpatient care settings. BMC Palliative Care, 16, 59. DOI: 10.1186/s12904-017-0237-5en_US
dc.identifier.urihttps://doi.org/10.1186/s12904-017-0237-5
dc.identifier.urihttp://hdl.handle.net/1828/10641
dc.language.isoenen_US
dc.publisherBMC Palliative Careen_US
dc.subjectbereaved family members
dc.subjectquality of care
dc.subjectinpatient healthcare settings
dc.subjectend-of-life care
dc.subjectpalliative care
dc.subjectInstitute on Agine and Lifelong Health
dc.subject.departmentSchool of Nursing
dc.titleBereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settingsen_US
dc.typeArticleen_US

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