Exploring frailty in older adults with cancer: Journey mapping a patient-reported outcome measure

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dc.contributor.authorKwon, Jae-Yung
dc.contributor.authorMoynihan, Melissa
dc.contributor.authorWebster, Catherine
dc.contributor.authorWolff, Angela C.
dc.contributor.authorHorlock, Hilary
dc.contributor.authorWilson, Lorraine
dc.contributor.authorMariano, Caroline
dc.contributor.authorSawatzky, Richard
dc.date.accessioned2026-06-22T22:46:35Z
dc.date.available2026-06-22T22:46:35Z
dc.date.issued2025
dc.description.abstractFrailty in older adults with cancer is complex, evolving, and often overlooked in care. This qualitative study explored how frailty is experienced and reported using patient-reported outcome measures (PROMs) and visualized over time through journey maps. Eleven participants (65+) completed the Comprehensive Frailty Assessment Instrument (CFAI) and semi-structured interviews. Individual journey maps combined CFAI scores with personal narratives to track changes in physical, mental, and social aspects of frailty over time. While PROMs showed variability in frailty severity, narratives revealed discrepancies, such as low frailty scores despite significant treatment-related challenges. Fatigue, emotional distress, and isolation were common during treatment, with lasting impacts post-treatment. Findings suggest PROMs alone may not fully capture lived experience. Integrating narrative dialogue provides a more person-centred approach to frailty assessment and care planning.
dc.description.reviewstatusReviewed
dc.description.scholarlevelFaculty
dc.identifier.citationKwon, J.-Y., Moynihan, M., Webster, C., Wolff, A. C., Horlock, H., Wilson, L., Mariano, C., & Sawatzky, R. (2025). Exploring frailty in older adults with cancer: Journey mapping a patient-reported outcome measure. Canadian Journal on Aging, 44(3), 377–384. https://doi.org/10.1017/S0714980825100196
dc.identifier.urihttps://doi.org/10.1017/S0714980825100196
dc.identifier.urihttps://hdl.handle.net/1828/24007
dc.language.isoen
dc.publisherCanadian Journal on Aging
dc.rightsAttribution 4.0 Internationalen
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectfrailty
dc.subjectjourney maps
dc.subjectolder adults
dc.subjectpatient-reported outcome measures
dc.subjectPROMs
dc.subjectqualitative study
dc.subjectInstitute on Aging and Lifelong Health
dc.subject.departmentSchool of Nursing
dc.subject.departmentSchool of Health Information Science
dc.titleExploring frailty in older adults with cancer: Journey mapping a patient-reported outcome measure
dc.typeArticle

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