Maximizing the use of Special Olympics International's Healthy Athletes database: A call to action

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dc.contributor.authorLloyda, Meghann
dc.contributor.authorFoley, John T.
dc.contributor.authorTemple, Viviene A.
dc.date.accessioned2018-11-02T07:57:44Z
dc.date.available2018-11-02T07:57:44Z
dc.date.copyright2018en_US
dc.date.issued2018
dc.description.abstractThere is a critical need for high-quality population-level data related to the health of individuals with intellectual disabilities. For more than 15 years Special Olympics International has been conducting free Healthy Athletes screenings at local, national and international events. The Healthy Athletes database is the largest known international database specifically on the health of people with intellectual disabilities; however, it is relatively under-utilized by the research community. A consensus meeting with two dozen North American researchers, stakeholders, clinicians and policymakers took place in Toronto, Canada. The purpose of the meeting was to: 1) establish the perceived utility of the database, and 2) to identify and prioritize 3–5 specific priorities related to using the Healthy Athletes database to promote the health of individuals with intellectual disabilities. There was unanimous agreement from the meeting participants that this database represents an immense opportunity both from the data already collected, and data that will be collected in the future. The 3 top priorities for the database were deemed to be: 1) establish the representativeness of data collected on Special Olympics athletes compared to the general population with intellectual disabilities, 2) create a scientific advisory group for Special Olympics International, and 3) use the data to improve Special Olympics programs around the world. The Special Olympics Healthy Athletes database includes data not found in any other source and should be used, in partnership with Special Olympics International, by researchers to significantly increase our knowledge and understanding of the health of individuals with intellectual disabilities.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.description.sponsorshipFinancial support for this meeting was provided by a Canadian Institutes for Health Research (CIHR) meeting grant (#137225) with additional funding from Special Olympics Canada. We would like to thank all the participants for their participation and engagement.en_US
dc.identifier.citationLloyda, M., Foley, J.T. & Temple, V.A. (2018). Maximizing the use of Special Olympics International's Healthy Athletes database: A call to action. Research in Developmental Disabilities, 73, 58-66. https://doi.org/10.1016/j.ridd.2017.12.009en_US
dc.identifier.urihttps://doi.org/10.1016/j.ridd.2017.12.009
dc.identifier.urihttp://hdl.handle.net/1828/10224
dc.language.isoenen_US
dc.publisherResearch in Developmental Disabilitiesen_US
dc.subjectSpecial Olympics
dc.subjectHealthy Athletes database
dc.subjectAdministrative health data
dc.subjectHealth
dc.subjectConsensus
dc.subjectIntellectual disability
dc.subject.departmentDepartment of Educational Psychology and Leadership Studies
dc.titleMaximizing the use of Special Olympics International's Healthy Athletes database: A call to actionen_US
dc.typeArticleen_US

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