Exploring what is important to parents of children receiving palliative care: an integrative review

Files

Dart_Linda_MN_2014.pdf (417.61 KB)

Date

2014-04-25

Authors

Dart, Linda

Journal Title

Journal ISSN

Volume Title

Publisher

Abstract

Objectives: To identify what is important to parents of children with life-threatening or lifelimiting conditions (LTCs) who receive pediatric palliative care (PPC) and make recommendations for improvements for PPC care delivery. Method: An integrative literature review was conducted with 11 qualitative and mixed-methods studies, published between 2000 and 2013 and retrieved via CINAHL, Google Scholar, Web of Science, and University of Victoria Library. Selected studies met inclusion criteria and reported what was important to parents of children receiving PPC, as identified by parents. Results: Continuity of care, effective communication between health care professionals and with parents and support through their child’s illness and death was important to parents and contributed to the preservation of their roles as parents while receiving PPC. Parents identified bereavement support and pain and symptom management as priority areas for improvement. Conclusions: Improvements to PPC can be achieved through care coordination, bereavement support, education for PPC and pediatric health care professionals, and further research. Keywords: children, families, family-centred care, palliative care, parents, pediatric palliative care, pediatrics

Description

Keywords

children, families, family-centred care, palliative care, parents, pediatric palliative care, pediatrics

Citation

URI

http://hdl.handle.net/1828/5290

Collections

Graduate Projects (Nursing)
 
University of Victoria Libraries

We acknowledge and respect the Lək̓ʷəŋən (Songhees and Esquimalt) Peoples on whose territory the university stands, and the Lək̓ʷəŋən and W̱SÁNEĆ Peoples whose historical relationships with the land continue to this day.