Exploring what is important to parents of children receiving palliative care: an integrative review

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dc.contributor.authorDart, Linda
dc.contributor.supervisorStajduhar, Kelli
dc.date.accessioned2014-04-25T23:12:50Z
dc.date.available2014-04-25T23:12:50Z
dc.date.copyright2014en_US
dc.date.issued2014-04-25
dc.degree.departmentSchool of Nursingen_US
dc.degree.levelMaster of Nursing M.N.en_US
dc.description.abstractObjectives: To identify what is important to parents of children with life-threatening or lifelimiting conditions (LTCs) who receive pediatric palliative care (PPC) and make recommendations for improvements for PPC care delivery. Method: An integrative literature review was conducted with 11 qualitative and mixed-methods studies, published between 2000 and 2013 and retrieved via CINAHL, Google Scholar, Web of Science, and University of Victoria Library. Selected studies met inclusion criteria and reported what was important to parents of children receiving PPC, as identified by parents. Results: Continuity of care, effective communication between health care professionals and with parents and support through their child’s illness and death was important to parents and contributed to the preservation of their roles as parents while receiving PPC. Parents identified bereavement support and pain and symptom management as priority areas for improvement. Conclusions: Improvements to PPC can be achieved through care coordination, bereavement support, education for PPC and pediatric health care professionals, and further research. Keywords: children, families, family-centred care, palliative care, parents, pediatric palliative care, pediatricsen_US
dc.description.scholarlevelGraduateen_US
dc.identifier.urihttp://hdl.handle.net/1828/5290
dc.language.isoenen_US
dc.rights.tempAvailable to the World Wide Weben_US
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/2.5/ca/*
dc.subjectchildrenen_US
dc.subjectfamiliesen_US
dc.subjectfamily-centred careen_US
dc.subjectpalliative careen_US
dc.subjectparentsen_US
dc.subjectpediatric palliative careen_US
dc.subjectpediatricsen_US
dc.titleExploring what is important to parents of children receiving palliative care: an integrative reviewen_US
dc.typeprojecten_US

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