The current state of birth outcome and birth defect surveillance in northern regions of the world

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dc.contributor.authorArbour, Laura
dc.contributor.authorMelnikov, Vladimir
dc.contributor.authorMcIntosh, Sarah
dc.contributor.authorOlsen, Britta
dc.contributor.authorOsborne, Geraldine
dc.contributor.authorVaktskjold, Arild
dc.date.accessioned2021-01-18T23:42:45Z
dc.date.available2021-01-18T23:42:45Z
dc.date.copyright2009en_US
dc.date.issued2009
dc.description.abstractObjectives. Little is known about the rates of congenital anomalies in the northernmost regions of the world. As in other parts of the world, it is crucial to assess the relative rates and trends of adverse birth outcomes and birth defects, as indicators of population health and to develop public health strategies for prevention. The aim of this review is to catalogue existing and developing birth outcome and birth defect surveillance within and around the geographic jurisdiction of the International Union of Circumpolar Health (IUCH). Study design. Descriptive study. Methods. The representatives of the IUCH Birth Defects Working Group catalogued existing and developing birth and birth defect surveillance systems and the extent of information they contain to determine inter-regional comparability. Results. Systematic population-based registration of birth outcomes including birth defects occurs to some degree in all circumpolar countries, but the quality of collection and the coverage in northernmost regions vary. There are limited circumpolar jurisdictions with surveillance systems collecting birth defect information beyond the perinatal period. Efforts are underway in Canada and Russia to improve the quality and comprehensiveness of the information collected in the northern regions. Conclusions. Although there is variability in the comprehensiveness of information collected in northern jurisdictions limiting sophisticated comparative analyses between regions, there is untapped potential for baseline analyses of specific risks and outcomes that could provide insight into geographic differences and gaps in surveillance that could be improved.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.description.sponsorshipThis is an International Union of Circumpolar Health Working Group Report to the International Polar Year, Arctic Human Health Initiative. This work was partially supported by the Canadian Institutes of Health Research (CIHR, grant number CTP-79853), as part of the Team Grant on Circumpolar Health, and the Nordisk ministerråd (grant number 80111). L. Arbour is supported by the Michael Smith Foundation for Health Research. We are grateful for the assistance of Dr. Sten Rasmussen, who provided information on the Danish Medical Register. We thank Beatrixe Whittome Waygoodfor her assistance in the final formatting of this document.en_US
dc.identifier.citationArbour, L., Melnikov, V., McIntosh, S., Olsen, B., Osborne, G. & Vaktskjold, A. (2009). The current state of birth outcome and birth defect surveillance in northern regions of the world. International Journal of Circumpolar Health, 68(5), 443-458. https://doi.org/10.3402/ijch.v68i5.17376en_US
dc.identifier.urihttps://doi.org/10.3402/ijch.v68i5.17376
dc.identifier.urihttp://hdl.handle.net/1828/12568
dc.language.isoenen_US
dc.publisherInternational Journal of Circumpolar Healthen_US
dc.subjectarctic
dc.subjectcircumpolar
dc.subjectbirth defects
dc.subjectmedical birth registries
dc.subjectcongenital anomalies surveillance
dc.subject.departmentDivision of Medical Sciences
dc.subject.departmentSchool of Medical Sciences
dc.titleThe current state of birth outcome and birth defect surveillance in northern regions of the worlden_US
dc.typeArticleen_US

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