Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision makers: Results of a scoping review
Date
2020
Authors
Frisch, Noreen
Atherton, Pat
Doyle-Waters, Mary M.
MacLeod, Martha L.P.
Mallidou, Anastasia
Sheane, Vanessa
Ward, John
Woodley, Jinelle
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Publisher
Research Involvement and Engagement
Abstract
Background: The Canadian Institutes of Health Research funded a program, “patient-oriented research” (POR), to change the way health research is done. POR involves patients and their families/caregivers as equal partners on research teams with researchers, healthcare providers and decision-makers. The authors of this paper work through a unit in British Columbia, Canada that functions to help research teams learn how to do patient-oriented research. We felt that we could not train people if we didn’t first understand what others had learned about what competencies (knowledge, skills and attitudes) were helpful for members of these research teams.
Method: We used a method called a scoping review to search literature on patient-involved research. Our search included papers in academic journals as well as information on websites, training manuals, conference proceedings, governmental documents and statements from health organizations.
Findings: Writers reported the usefulness of many competencies for researchers and patients, with fewer competencies for healthcare providers or decision-makers. The main competencies for researchers had to do with participation, communication and conflict management; for patients they had to do with research knowledge and skills, cultural competence and participation. It was helpful that all team members want to work as part of a group for the public good.
Conclusions: We worked with an advisory group of people representing patients and their families/caregivers, researchers, healthcare providers and decision-makers to review our findings. We concluded that our competency statements are helpful for people to determine what they need to know or learn as they join research teams.
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Citation
Frisch, N., Atherton, P., Doyle-Waters, M. M., MacLeod, M. L. P., Mallidou, A., Sheane, V., Ward, J., & Woodley, J. (2020). Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decisionmakers: Results of a scoping review. Research Involvement and Engagement, 6(1). https://doi.org/10.1186/s40900-020-0180-0