Palliative family caregivers’ accounts of health care experiences: The importance of “security”

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dc.contributor.authorFunk, Laura M.
dc.contributor.authorAllan, Diane E.
dc.contributor.authorStajduhar, Kelli I.
dc.date.accessioned2013-08-30T22:22:54Z
dc.date.available2013-08-30T22:22:54Z
dc.date.copyright2009en_US
dc.date.issued2009-11-26
dc.description.abstractObjective: When providing care for a loved one with a terminal illness, family members often look to health care providers for guidance and expertise. The objective of this study is to explore family caregiver accounts of their experienceswithin the health care system and with individual providers. Methods: A thematic analysis of secondary qualitative data was performed. Data are from a subsample of bereaved and current family caregivers (N ¼ 31) in a prior study of coping in end-of-life cancer situations. Data from these participants referring to experiences with health care providers was thematically coded and the concept of “security” was used as an analytic lens to facilitate conceptual development and exploration. Results: Considered together, the findings can be viewed as manifestations of a need and desire for security in palliative family caregiving. Specifically, family caregivers’ accounts illustrate the importance of feeling secure that health care services will be provided by competent professionals; feeling secure in their timely access to needed care, services, and information; and feeling secure in their own identity and self-worth as a caregiver and individual. In addition, the findings suggest a conceptualization of security that extends beyond trust in individuals to include a generalized sense of institutional trust in the health care system. Significance of results: The concept of security moves beyond description of individual satisfaction or dissatisfaction with health care to identify a common, foundational need underlying such evaluations. Further empirical research is needed that explicitly focuses on caregivers’ experiences of security and insecurity in the domains identified in this article. This will contribute to theory building as well as assist in identifying the causes and consequences of security.en_US
dc.description.reviewstatusRevieweden_US
dc.description.scholarlevelFacultyen_US
dc.description.sponsorshipThis research is supported by the Canadian Cancer Society through a grant administered by the National Cancer Institute of Canada. Dr. Stajduhar is supported by a New Investigator Award from the Canadian Institutes for Health Research and a Scholar Award from the Michael Smith Foundation for Health Research.en_US
dc.identifier.citationLaura M. Funk, Diane E. Allan and Kelli I. Stajduhar (2009). Palliative family caregivers' accounts of health care experiences: The importance of “security”. Palliative and Supportive Care, 7, pp 435-447. doi:10.1017/S1478951509990447.en_US
dc.identifier.urihttp://dx.doi.org/10.1017/S1478951509990447
dc.identifier.urihttp://hdl.handle.net/1828/4888
dc.language.isoenen_US
dc.publisherCambridge University Pressen_US
dc.subjectFamily caregiving
dc.subjectPalliative
dc.subjectSecurity
dc.subjectHealth care satisfaction
dc.subjectCentre on Aging
dc.subjectInstitute on Aging and Lifelong Health
dc.subject.departmentSchool of Nursing
dc.titlePalliative family caregivers’ accounts of health care experiences: The importance of “security”en_US
dc.typeArticleen_US

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