Why collect and use race/ethnicity data? A qualitative case study on the perspectives of mental health providers and patients during COVID-19

dc.contributor.authorClark, Nancy
dc.contributor.authorQuan, Cindy
dc.contributor.authorElgharbawy, Heba
dc.contributor.authorDavid, Anita
dc.contributor.authorLi, Michael
dc.contributor.authorMah, Christopher
dc.contributor.authorMurphy, Jill
dc.contributor.authorCostigan, Catherine L.
dc.contributor.authorGanesan, Soma
dc.contributor.authorGuzder, Jaswant
dc.date.accessioned2025-08-15T19:08:11Z
dc.date.available2025-08-15T19:08:11Z
dc.date.issued2024
dc.description.abstractContext: Calls to collect patients’ race/ethnicity (RE) data as a measure to promote equitable health care among vulnerable patient groups are increasing. The COVID-19 pandemic has highlighted how a public health crisis disproportionately affects racialized patient groups. However, less is known about the uptake of RE data collection in the context of mental health care services. Methodology: A qualitative case study used surveys with mental health patients (n = 47) and providers (n = 12), a retrospective chart review, and a focus group to explore healthcare providers’ and patients’ perspectives on collecting RE data in Canada. Results: The patient survey data and focus groups show that patients avoid providing identifying information due to perceived stigma and discrimination and a lack of trust. Providers did not feel comfortable asking patients about RE, leading to chart review data where RE information was not systematically collected. Conclusions: The uptake and implementation of RE data collection in mental health care contexts require increased training and support, systematic implementation, and further evaluation and measurement of how the collection of RE data will be used to mitigate systemic racism and improve mental health outcomes.
dc.description.reviewstatusReviewed
dc.description.scholarlevelFaculty
dc.description.sponsorshipThis research was funded by the Internal Research Creative Projects Grant 2021 from the University of Victoria, grant number 100000-71793.
dc.identifier.citationClark, N., Quan, C., Elgharbawy, H., David, A., Li, M., Mah, C., Murphy, J., Costigan, C. L., Ganesan, S., & Guzder, J. (2024). Why collect and use race/ethnicity data? A qualitative case study on the perspectives of mental health providers and patients during COVID-19. International Journal of Environmental Research and Public Health, 21(11), 1499. https://doi.org/10.3390/ijerph21111499
dc.identifier.urihttps://doi.org/10.3390/ijerph21111499
dc.identifier.urihttps://hdl.handle.net/1828/22599
dc.language.isoen
dc.publisherInternational Journal of Environmental Research and Public Health
dc.rightsCC BY 4.0
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectcase study
dc.subjectCOVID-19
dc.subjectcultural safety
dc.subjectdisaggregated data
dc.subjectethnicity
dc.subjecthealth equity
dc.subjectintersectionality
dc.subjectmental health
dc.subjectrace-based data
dc.subjectracism
dc.subject.departmentSchool of Nursing
dc.subject.departmentDepartment of Psychology
dc.titleWhy collect and use race/ethnicity data? A qualitative case study on the perspectives of mental health providers and patients during COVID-19
dc.typeArticle

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