dc.contributor.author	Frisch, Noreen
dc.contributor.author	Mallidou, Anastasia
dc.contributor.author	Atherton, Pat
dc.contributor.author	Doyle-Waters, Mary M.
dc.contributor.author	MacLeod, Martha L.P.
dc.contributor.author	Sheane, Vanessa
dc.contributor.author	Ward, John
dc.contributor.author	Woodley, Jinelle
dc.date.accessioned	2019-06-10T16:02:15Z
dc.date.available	2019-06-10T16:02:15Z
dc.date.copyright	2019	en_US
dc.date.issued	2019-06-10
dc.description.abstract	Background The Canadian Institutes of Health Research (CIHR) launched an initiative called the Strategy for Patient-Oriented Research (SPOR) encouraging patient-oriented research (POR) that engages patients as equal partners in research teams alongside researchers, healthcare providers and health system decision-makers. Other countries have launched similar initiatives yet there has never been full review of the competencies needed by individuals to engage in this work. Purpose and Objectives Our purpose was to summarize existing knowledge on such competencies. Our objectives were to systematically explore literature, articulate competencies necessary for POR team members, identify research gaps and provide recommendations for further research. Methods A scoping review of the peer-reviewed and grey literature was conducted. A total of 2,042 sources was retrieved through standard health databases and search methods. Data were extracted from 35 peer-reviewed papers and 38 grey literature sources. We used an iterative process to reach consensus on competency statements. Findings For researchers, the main knowledge and skill competencies were in categories of participation, communication and teamwork and conflict/tension management. For patients the main competencies were in research knowledge and skills, cultural competence/context and participation. Few competencies were documented for the other stakeholder groups. Attitudes demonstrating inclination to conduct POR were noted for all, as were personal characteristics that support engagement in this work. Conclusions The competencies provide an inclusive view of the knowledge, skills and attitudes needed to conduct POR. These competencies can be used to consider learning needs of research team members. Topics for future research are suggested.	en_US
dc.description.reviewstatus	Reviewed	en_US
dc.description.scholarlevel	Faculty	en_US
dc.description.sponsorship	We gratefully acknowledge funding by the BC SPOR SUPPORT Unit through the Canadian Institutes of Health Research (CIHR) – Strategy for Patient-Oriented Research (SPOR), and the BC Academic Health Science Network Society.	en_US
dc.identifier.uri	http://hdl.handle.net/1828/10917
dc.language.iso	en	en_US
dc.rights	Attribution-NonCommercial-ShareAlike 2.5 Canada	*
dc.rights	Attribution-NonCommercial-ShareAlike 2.5 Canada	*
dc.rights.uri	http://creativecommons.org/licenses/by-nc-sa/2.5/ca/	*
dc.subject	patient-oriented research
dc.subject	patient and pubic involvement
dc.subject	patient engagement in research
dc.subject	competencies
dc.subject	scoping review
dc.subject.department	School of Nursing
dc.title	Patient-Oriented Research Competencies in Health (PORCH) for Researchers, Patients, Healthcare Providers, and Decision-makers: Results of a scoping review	en_US
dc.type	Article	en_US

Patient-Oriented Research Competencies in Health (PORCH) for Researchers, Patients, Healthcare Providers, and Decision-makers: Results of a scoping review

Files

Original bundle

License bundle

Collections