Patient-Oriented Research Competencies in Health (PORCH) for Researchers, Patients, Healthcare Providers, and Decision-makers: Results of a scoping review
Date
2019-06-10
Authors
Frisch, Noreen
Mallidou, Anastasia
Atherton, Pat
Doyle-Waters, Mary M.
MacLeod, Martha L.P.
Sheane, Vanessa
Ward, John
Woodley, Jinelle
Journal Title
Journal ISSN
Volume Title
Publisher
Abstract
Background
The Canadian Institutes of Health Research (CIHR) launched an initiative called the Strategy for Patient-Oriented Research (SPOR) encouraging patient-oriented research (POR) that engages patients as equal partners in research teams alongside researchers, healthcare providers and health system decision-makers. Other countries have launched similar initiatives yet there has never been full review of the competencies needed by individuals to engage in this work.
Purpose and Objectives
Our purpose was to summarize existing knowledge on such competencies. Our objectives were to systematically explore literature, articulate competencies necessary for POR team members, identify research gaps and provide recommendations for further research.
Methods
A scoping review of the peer-reviewed and grey literature was conducted. A total of 2,042 sources was retrieved through standard health databases and search methods. Data were extracted from 35 peer-reviewed papers and 38 grey literature sources. We used an iterative process to reach consensus on competency statements.
Findings
For researchers, the main knowledge and skill competencies were in categories of participation, communication and teamwork and conflict/tension management. For patients the main competencies were in research knowledge and skills, cultural competence/context and participation. Few competencies were documented for the other stakeholder groups. Attitudes demonstrating inclination to conduct POR were noted for all, as were personal characteristics that support engagement in this work.
Conclusions
The competencies provide an inclusive view of the knowledge, skills and attitudes needed to conduct POR. These competencies can be used to consider learning needs of research team members. Topics for future research are suggested.
Description
Keywords
patient-oriented research, patient and pubic involvement, patient engagement in research, competencies, scoping review